Life With Morgellons – Sunny’s Story
From Sunny Simmons
January ’08 – Sunny Simmons
I have been a Registered Nurse since 1977. Never in my worst nightmare could I have dreamed the events in my life in the past several years. My nightmare began back in the fall, 2001. This is when I developed what was thought to be contact dermatitis; a fancy name for skin rashes. Next, I was told it was head & body lice or even scabies. This was not too far from the impossible & considered to be just a job hazard. I worked as a Public Health Dept R.N. I was treated by my office docs, initially, without much thought to it. However by Nov. 2001 it was clear that something more involved was going on and I saw my first dermatologist. He did a few punch biopsies of sores on my legs and arm. These came back as inflamed tissue, negative for parasites. No further tests were done. I will never forget the last time I saw him. He came into the room with one assistant; he then left. Upon returning he had 4 assistants with him. He said to me, “I don’t know why you think you have bugs in your skin but you don’t. He gave me a prescription for Orap. I sat in my car in the parking lot and cried for a good hour. I never went back.
In January 2002, I was found by a local police officer wandering in the middle of the night in the midst of a severe thunderstorm. Thinking I was a victim of crime, I was taken to ER and had a CT scan, which was normal. I have no memory of this entire episode.
In April 2002, my hair on the left side of my head totally sloughed off while shampooing. About this time lab work by my general MD began coming back with severe anemia & abnormal differentials. However, my employer made me consult a Psychiatrist. This doctor (Psychiatrist and a long time collegue) was upset that my real illness was being ignored. He ordered a few tests just to get started and stated that an Infectious Disease Doctor should manage this. The MRI he ordered in May 2002, was not done until July 2002. It was shockingly positive for a few scattered unidentified lesions in the white matter of all areas of the brain. This was explained as possibly “normal aging process” However; the CT scan from Jan ’02 & previous MRI from 1997 were completely normal. (I was actually told that the MRI was normal and only found out the real results by accident).
This is just a brief view of how life changed for me after being infected with Morgellons. I’m sure all details are not necessary. I will just do a condensed version of my Medical Situation since being infected with Morgellons Disease. I was in a unique position to be able to view this situation from the patient’s side as well as the medical providers’.